Local Mother Spreads the Word About Rare Condtion

Rare Condition

CHARLES CITY, IA – A local mother is looking to raise awareness about a rare genetic disorder.

Meet two year old Amantae Elliott. He was born with ichthyosis.

Amantae suffers from a mild form. His skin often times looks scaly, he overheats easily and is prone to frequent skin infections.

There are 28 different types ichthyosis and some are fatal.

His mother Manessa says she’s still learning tricks to help him, but Amantae’s activities will be very limited in the future.

[lin_video src=http://eplayer.clipsyndicate.com/embed/player.js?aspect_ratio=16×9&auto_next=1&auto_start=0&div_id=videoplayer-1364940929&height=360&page_count=5&pf_id=9620&show_title=1&va_id=3999229&width=640&windows=2 service=syndicaster width=640 height=360 div_id=videoplayer-1364940929 type=script]
She said, “He probably won’t be able to play sports. We took him the “McDonald’s Playland” for the first time a few weeks ago a couple of weeks ago and he made it for ten minutes and almost had a heat stroke, so there’s a lot of things that I know that breaks my heart that he doesn’t, but I don’t think he realizes it.”

The Elliott family is hosting a fundrasier tomorrow at the “Pub on the Cedar” in Charles City from 10:30 to 2:00 pm.

All proceeds will go towards the “First Foundation” an ichthyosis patient advocacy program.

blog comments powered by Disqus