NORTHWOOD, IA — It is a genetic disease that affects about 30,000 children and adults in the U.S.
Those with cystic fibrosis are only expected to live into their late 30s, but a group in Northwood is not giving up hope.
They are raising money for the disease with the goal of finding a cure.
Eva is four-months-old and has cystic fibrosis, but she is not alone. Thousands of people are currently battling this disease.
So her aunt decided it was time to take matters into her own hands.
“I need to raise thousands for research to find a cure because Eva, and there’s so many people that suffer, and I just can’t watch and think about her life could end early because of this horrible disease,” said JoAnn Greeley.
So she began thinking up creative ways to raise money.
“I’m a photographer, I thought I’ll just do portraits, all the money goes to the Cystic Fibrosis Foundation, people then started saying they’ll donate silent auction items,” Greeley said.
The number of donated items has grown significantly, surpassing many expectations.
“My sister at first told me, JoAnn, this isn’t going to work, why are you putting all of this time into it, but it surpassed any expectations I had,” Greeley said.
After getting this big of a response in only her first year, Greeley said this fundraising event is not going anywhere.
“I’m not quitting. As Eva’s aunt, I cannot quit. This will be an annual event. Next year we’ll have a new theme, we’re not stopping until there’s a cure,” Greeley said.
She will be taking all of the money raised to the Cystic Fibrosis Foundation in Des Moines on Monday.
She hopes to start up a non-profit called “Picturing a Cure” in the near future.